Everyone please keep Bob and Pam in your thoughts and prayers. This is the latest from Pam sent to me from Phil Lacy:
Phil,
Sorry that you didn’t get the update from Saturday, but here we go again:
Bob is finally home! That was a long, long 30 days! The equipment arrived Thursday, some home and some to the rehab facility, then Bob was transferred by medivan home on Friday. My Mom and Dad arrived here from Phoenix on Thursday night so they are staying with us this first week to help us get settled. We have put a hospital bed and the equipment in our family room on the first floor since he is still paralyzed on the left side and cannot stand, walk or use stairs. Our friend Scott found a portable wheelchair ramp on Ebay and installed it Sunday, so we can at least get him outside, but since he cannot get in and out of a vehicle I will have to rent a wheelchair accessible van when we need to get to an appointment. Alex changed his mind about going to New Jersey for Spring break and he arrives home today for a week. Our friend Mary called her hair stylist and he came to the house to give Bob a haircut and a shave, what a huge difference! He has cut his pain meds down considerably and feels better already! He lost about 17 pounds, but now that he’s home eating my food (and my Mom’s) again he will hopefully regain some of it. A nurse will visit twice a week to draw blood and do vitals, physical therapy is scheduled to come 3 times a week and we are still awaiting word from occupational and speech therapy.
Our doctor emailed me yesterday to inform us that the tumor has progressed even more toward the brain stem and there are new tumors on the other side of Bob’s brain. But Bob has decided not to give up yet and we are going downtown tomorrow for the experimental drug infusion and starting a new chemo that will be given orally each night at home. We all know his “goal” date and he refuses to give up until he accomplishes that. We have had lots of visitors since arriving home, with many more are scheduled to come. Everyone is welcome! And a huge thank you again for all of the help and support from everyone, little things like finding things I need and making phone calls make a huge difference, not to mention the food and cards that have arrived. Everything continues to help lift his spirits and mine and it is truly overwhelming. The fight continues!
Pam